MY PEOPLE

Its important to offer a word of caution about some online groups. Note that messages or advice posted may be based on the experience of one individual only, or may not be from a credible source so it may not be accurate.

Online support

These online resources may be useful for you and your situation.​

  • Pancare Online Support Groups – Pancare run two patient and carer support groups each month. The first of these is a peer-to-peer support group providing a caring, an open forum where you can share your experiences with other patients and carers. The second support group held each month will include a presenter speaking about a specific, relevant topic, such as survivorship, diet and nutrition, living with cancer during COVID-19.
  • Whipple Warriors – the target group for this worldwide facebook group is people who have had a Whipple procedure to treat their pancreatic cancer​
  • A Common Path: Pancreatic cancer – this is a series of filmed pancreatic cancer stories – note that Tareanna has the rarer form of neuroendocrine (NETs) pancreatic cancer
  • Cancer Council Online Community – patients, families and carers can join these online forums to share stories and questions with others affected by cancer​
  • Pancreatic Cancer UK – this support organisation in the United Kingdom has a website with accurate information and good advice for people affected by pancreatic cancer​

Telehealth support

Pancare Foundation offer a free Telehealth Support service to patients and their carers. This service helps provide patient and carers with health, emotional, practical and financial support during their pancreatic cancer journey. These one-on-one calls with a specialised registered Pancreatic Nurse or trained Patient & Carer Support team member can be booked using their online booking system via the Pancare website.